Teen battling incurable condition hoping to travel to US

A Victorian teen with an incurable condition is hoping to travel to the United States for the trip of a lifetime.

A team of fitness fanatics is trying to raise $20,000 so Tyson Stanley, 17, can meet his comic book idols at Comic Con in San Diego, California.

“I’m thinking either Thanos or Deadpool,” Tyson said of his costume choices.

“Because they both sit in chairs at some point.”

Tyson Stanley (right) who has a rare incurable condition hopes to travel to Comic Con in San Diego (left, Stuart Cunningham). Source: 7 News

Tyson suffers from an extremely rare condition called Fibrodysplasia ossificans progressiva or FOP.

It means his muscle and joint tissue is slowly being turned into bone. It affects one in two million people. 

His fitness coach, Stuart Cunningham, is leading the charge to get him overseas. He’s completed four days of fitness challenges and encouraged people to donate via a GoFundMe page. 

The pair have worked together for about six years and have a strong bond. 

“We’re trying to sort of see what we could achieve and see if we can get his condition to work better for him,” Mr Cunningham said.

A Dead Pool costume at Comic Con, San Diego in 2017. Source: Getty Images