'There's no cure': How a young Aussie explorer lost control of his body

At just 33-years-old, Jason Lynch was living his dream life, backpacking around the world, filming extreme sports and teaching English to children in a Columbian village.

He had never heard of Dystonia – but that didn’t stop the debilitating illness threatening to take his dream away by causing horrific spasms.

After gallivanting around the world, the Coffs Harbour native moved up to Australia’s top end to embrace the full Darwin lifestyle.

But in the first week of 2017, Jason’s head started pulling to the right.

Concerned but not terrified, Jason said he knew something wasn’t right but had no idea what was to follow.

A series of tests, he was diagnosed with Rapid Onset Dystonia, a neurological disorder that at its worst can be “completely debilitating”.

In a confronting video, the keen explorer said his “life and body were normal and healthy”.

Standing in front of the camera as his head twitches against his will, Jason describes exactly what the disease took away from him in a bid to raise awareness for the currently incurable disease.

“I am only 33 years old, now faced with a movement disorder, there’s no cure,” he said.

“My life before Dystonia… I want it back.

“I don't want my reality to be pictures of memories, but most of all I just want the Dystonia to stop.”

Lucy Arnott started a GoFundMe pagein a bid to raise $100,000 for “treatment and care not covered by the Australian health care systems”.

“For Jason, he cannot 100% control his neck muscles from spasming and twisting his head and jaw to the right hand side. It's debilitating and has turned his life upside down in a very short period of time,” she wrote.

“He has gone from living a happy, healthy life, working 6 days a week, to being unable to work, and even struggling with the most basic of daily activities like eating.”