Family raise funds to give their little boy a new lease of life

A Queensland couple desperate to better the life of their little boy is reaching out to the community for help.

Chase Walker-Steven is just a few days shy of four years old, but already suffers up to 100 seizures a day due to his severe, but undiagnosed, form of epilepsy.

The Regents Park toddler also has Spastic Quadriplegic Cerebral Palsy along with a neurodevelopmental disorder, rendering him unable to walk or talk.

Chase as a newborn. Photo: Facebook/Chasing Hope Fundraiser
Chase as a newborn. Photo: Facebook/Chasing Hope Fundraiser

Chase’s parents Jacinda Walker and Marcus Steven are doing everything in their power to improve Chase’s quality of life.

Even his adoring older sister, Nevaeh, wants to lend a hand.

“My daughter says, ‘I want to be a doctor so I can fix Chase’,” Ms Walker said. “Having Chase has made her realise life is such a blessing.”

Ms Walker is currently fundraising for her son, and while doctors have estimated Chase may not live past the age of 25, she has vowed to never stop fighting for him.

Chase's smile was his dad's favourite feature. Photo: Facebook/Chasing Hope Fundraiser
Chase's smile was his dad's favourite feature. Photo: Facebook/Chasing Hope Fundraiser

“My son is never going to walk, he’s never going to talk, I’ve got to wipe his tears and his nose,” she told Yahoo7. “It’s unfair.”

A trip to the neurologoist in late June found that Chase was having more than 100 seizures every day, with a lot of the episodes being in his sleep.

Last year, a severe 20-minute seizure robbed him of his ability to smile - his dad’s favourite feature.

To make Chase’s everyday activities easier for him and his family, Ms Walker and Mr Steven are raising money to help buy a modified car to fit his wheelchair.

Ms Walker said any donations towards the family would make a significant impact on Chase’s future.

Chase underwent a series of tests to discover he suffers from 100 seizures every day. Photo: Facebook/Chasing Hope Fundraiser
Chase underwent a series of tests to discover he suffers from 100 seizures every day. Photo: Facebook/Chasing Hope Fundraiser

“It would give him the fact of knowing that we wouldn’t have to make him wait six months for a chair. We could start his rehab and therapy straight away. He would have more of a chance of getting better and walking.”

The Brisbane mother said she hopes Chase’s story will make others appreciative of their own lives.

“I say don’t feel sorry for Chase, feel blessed for your life.”

If you would like to support the Chasing Hope Fundraiser, please visit their Facebook page.