Pemberton boy one of two with illness

Tayte Osborne, 5, enjoys building Lego with his sister Ruby, 3. Picture: Taelor Pelusey

A Pemberton boy's battle with a rare illness has prompted his family to raise awareness about the disorder.

Tayte Osborne, 5, was aged just three-and-a-half years when he was diagnosed with longitudinally extensive transverse myelitis.

Mother Dee Bradley said the disorder was detected by doctors after Tayte was treated for an ear infection.

"His balance was wobbly and his temperature was a little high but we thought it was just the infection," she said.

"Then we realised it was far more serious".

The auto immune disorder - which inflames the spinal cord and damages nerve fibres - is so rare that just one person for every one million is estimated to be afflicted.

Ms Bradley said the rarity of the disorder meant there was minimal research and support in Australia.

"There's only one other case in Australia so there's very little information out there," she said.

The family has created a Facebook page to track Tayte's journey and raise awareness about the disorder.

For more details on Tayte, LETM and fundraising events, search Tayte's Trek with LETM on Facebook or email taytestrek@outlook.com .