'We're shattered': Family out of options to fight little girl's brain tumour


The family of a little girl with an inoperable brain tumour have revealed that her overseas treatment has stopped working and they are “out of options”.

In November 2016, Adalynn Joy Sooter, from the US, was diagnosed with the rare and incurable brain tumour known as a Diffuse Intrinsic Pontine Glioma.

The tumour grows and eventually spreads down the brain stem, strangling it, and less than one per cent of children with the cancer survive past five years from diagnosis.

After her diagnosis, the three-year-old received 33 treatments of radiation, stabilising her tumour for six months.

The family of a little girl with an inoperable brain tumour have revealed that her overseas treatment has stopped working. Photo: GoFundMe/ Addy Joy Sooter’s brave fight

But an MRI in July revealed her tumour had started growing again and the family decided to put her through 10 treatments in Mexico.

She had a shunt procedure and all seemed to be successful, but last Friday Addy’s family revealed the tragic news that the tumour had spread.

“I know you’ve all been waiting for MRI results. I wish I had better news,” a post by her mother read.

“Addy’s MRI shows that her tumor has spread. It has moved down the brain stem into the cerebellum which is likely what caused the need for her shunt.

“There is also a large mass in her spine that is placing pressure on her spinal cord from the C1 to T11 vertebrae.

Last Friday Addy’s family revealed the tragic news that the tumour had spread. Photo: Facebook/ Hope for Addy Joy
In November 2016, Adalynn Joy Sooter was diagnosed with the rare and incurable brain tumour. Photo: GoFundMe/ Addy Joy Sooter’s brave fight

“Our doctors here have no options for us, and it seems the treatment in Mexico is no longer working.

“We’re out of options. We are shattered. Everything within us screams to keep fighting, but we’ve run out of weapons with which to do so.

“Addy is losing ground quickly. We don’t know how much time we have her for so we’re going to make the most of it. Thank you for your prayers.”

The family have started a GoFundMe to raise money for Addy’s medical bills.

After her diagnosis in 2016, the three-year-old  received 33 treatments of radiation. Photo: Facebook/ Hope for Addy Joy