Peter Gibilisco simply wants to live his life on his own terms, no matter his disability.
The researcher, author and advocate has first-hand experience of life in group homes for people with disability.
He moved into shared supported accommodation eight years ago, because he could not secure the extra government funding for another three hours a day to allow him to work safely and productively in his own home.
"I have found the move into supported accommodation resulted in extreme loss of control of my life," Dr Gibilisco told the disability royal commission on Monday.
"I have found it to be a loss to my way of life in a personal and social sense."
The honorary fellow at the University of Melbourne has a PhD in sociology and has written books about the politics of disability and social exclusion, as well as his experience living in shared homes.
Dr Gibilisco, who has a rare neurological condition, needs help with all areas of personal care and assistance to communicate.
Giving evidence using a communication device, Dr Gibilisco told of being stuck for an hour after falling half out of his wheelchair, unable to reach a buzzer to call for help.
He told the royal commission he experienced horrifying incidents last year where a staff member entered his room and tried to molest him.
People entering his room without his permission makes him feel unsafe, and annoyed that it still happens against his wishes.
Dr Gibilisco does not want sympathy, only empathy.
"True empathy is always found from discovering the true goals of the person with severe disabilities," he said.
"I simply want to live my life as much as I can on my own terms ... and to play the best hand with the cards I've been dealt."
Jane Rosengrave, who has an intellectual disability, described group homes - typically housing four-to-six people - as "little mini institutions".
Being able to live in a unit on her own, still supported by staff, for the last six years has been liberating.
"I am as free as a bird," she proudly declared to the royal commission, wearing a t-shirt with the same words.
Ms Rosengrave hopes the royal commission can help people with a disability gain choice and control over where they live and with whom, and to get the support they need to do it.
"I teach other people that they have got a voice to be heard - they have - not to be ignored."