A Kingston couple whose four-year-old daughter has epilepsy believes there needs to be more support for carers of people with epilepsy in the South West.
Brooke and Shawn Graham moved from Waroona to be closer to medical resources because their daughter Maddison’s epilepsy was complex multi-focal.
“It basically means we can’t quite see where her epilepsy is coming from, what is triggering it and medication doesn’t work all the time,” Mr Graham said.
The Grahams agreed their medical support was second to none, but there was next to no support for carers of people with epilepsy.
“We want to be able to go out for dinner — just the two of us — and know the person looking after Maddison is able to act properly if she has a seizure,” Mrs Graham said.
Epilepsy Action Australia is holding the WA Community Outreach Project and invites regional people with epilepsy, their carers, families or health professionals to let the organisation know what service gaps there are in WA.
“We’ll definitely be filling out the survey, we don’t know what or if there is anything in the South West for carers,” Mr Graham said.
He said he was glad EAA was doing the project and encouraged others to take part.
“Bunbury is fast-growing and with that, the need for epilepsy support in the region will grow,” he said.
The Grahams said their paediatrician, the Epilepsy Action WA representative and Maddison’s school had been invaluable in handling her epilepsy.Visit www.epilepsy.org.au.